Strokecast

Episode 028 — The Slow Road to Better

'It's good to be alive' -- Kim @strokecomeback #aphasia #stroke #tbi Click To Tweet

 

Shortly after my stroke, I wanted to learn more about just what was going on with my brain. Naturally, I turned to a combination of podcasts and book. There weren’t a whole lot of podcasts, though. That’s one reason I started this one, But there were a few.

Slow Road to Better podcast logo

One of them was The Slow Road to Better. This podcast, from the Stroke Comeback Center in Vienna, VA, is about life with aphasia. But it’s not just by aphasia researchers. The show is a panel discussion by folks living with aphasia and working to recover more and more of their language skills every day.

This week I talk with the folks from The Slow Road to Better. We explore what they get out of doing the show, what the wish other folks knew about aphasia, and much more.

Technical Notes

'I'm alive so no reason to do the lottery.' -- Pat @strokecomback #aphasia #stroke #tbi Click To Tweet

Usually when I do a remote interview, I conduct it over Skype or Zoom. This time, it was a little different. We needed to accommodate 5 people in Virginia plus my connection and maximize the audio quality in the process. Since they are already podcasters, that meant we could do a double ender.

That means Melissa recorded their end of the conversation, while I recorded mine. We talked with each other via cell phone. I had my phone headset on while they put me on speakerphone on a cell phone in the middle of the conference table.

Melissa then sent her recording in Audacity to me via Dropbox, and I stitched them together. It came out fairly well.

'when I get up in the morning I can't get mad because I never thought I was gonna be this good…Over time if you keep going then you keep going and you get better and better.' -- Pat @strokecomback #aphasia #stroke #tbi Click To Tweet

Hack of the week

The group had two main tips for living life with aphasia.

First find a support group. Look for other folks navigating life with aphasia and share your experience.

Second, if you find a task is too frustrating and you keep trying again and again and again, and it’s just not working. Take a break from it and work on some other aspect of your recovery. There’s always plenty of stuff to work on.

'I'm plenty of things that they are not saying that I will do.' -- Chris @strokecomeback #aphasia #stroke #tbi Click To Tweet

Related Links

The Slow Road to Better on Apple Podcasts

https://itunes.apple.com/us/podcast/the-slow-road-to-better/id1208357373

Stroke Comeback Center

https://strokecomebackcenter.org/

Stroke Comeback Center on Facebook

https://www.facebook.com/StrokeComebackCenter

Stroke Comeback Center on Twitter

https://twitter.com/StrokeComeback

National Aphasia Association

https://www.aphasia.org/

Bill’s conversation about aphasia with Reva Zimmerman

http://strokecast.com/reva

Hand in Hand Show

https://handinhandshow.com/

Enable Me

https://enableme.org.au/Community/Podcasts

'It is up there in my brain…that is every sentence every word -- but I can't get my words out . And it's frustrating obviously.' -- Chris @strokecomeback #aphasia #stroke #tbi Click To Tweet

Where do we go from here?

  • What’s your reaction to this episode? Let us know in the comments below. Visit the Stroke Comeback Center on Facebook and say “Hi,” to the team.
  • If you are a survivor or caregiver, find a support in real life or online. It can make a big difference.
  • When you encounter folks with aphasia, be patient. They are smart folks who’ve simply lost access to some of their language skills.
  • Subscribe for free to the Slow Road to Better in your favorite podcast app.
  • Subscribe for free to Strokecast in your favorite podcast app.
  • Don’t get best…get better.
'Every day's a miracle. Everyday I'm grateful when I wake up.' -- Melissa @strokecomeback #aphasia #stroke #tbi Click To Tweet

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