You can listen to the original episode here: Episode 021 — New Stroke Basics
02:23:07:Presenter: And how to peel a banana with one hand, hello? Accident 21 of the stroke gas wow. This analogy actually feels real.
02:23:13:Presenter: As Emily said in last week’s episode. No one plans to have a stroke.
02:23:23:Presenter: When it happens, it’s scary. It’s confusing your world turned upside down and for those around the stroke Survivor.
02:23:34:Presenter: Their world turned upside down as well as suddenly there are all sorts of new financial considerations new roles and responsibilities in the family to keep in mind.
02:23:41:Presenter: All these other things. It’s a very tumultuous time in all of this happens very quickly. And there are so many doctors.
02:23:50:Presenter: And nurses and therapists at a meet in those first few days. I see a lot of survivors and care givers.
02:23:54:Presenter: Asking questions online in various support group.
02:24:03:Presenter: It’s so with this episode. I hope I can just give some answers about what happens in those first few days from a very high level.
02:24:12:Presenter: This certainly will be a comprehensive list of everything you need to know but when this suddenly happens perhaps this episode can.
02:24:19:Presenter: Be a good first place to start first and most importantly though. I don’t know, you and I don’t know, your loved one.
02:24:21:Presenter: And I don’t know their stroke.
02:24:24:Presenter: Every stroke is different.
02:24:33:Presenter: If something I say contradicts the doctor or your medical team listen to the doctor or your medical team.
02:24:38:Presenter: It’s, okay, to ask them questions. And if I raise questions for you to follow up with them, that’s fine.
02:24:47:Presenter: But remember they are the expert, I’m just a guy on the internet with a background in marketing as I said, this is going to be just high level overview.
02:24:55:Presenter: Things you may encounter or may want to know that said, if you are caregiver first breathe.
02:25:02:Presenter: You’re going through a lot with your new role and its role you probably never even planned on and it’s not one you really.
02:25:09:Presenter: At a lot of time to think about right now, there’s a ton to do, and there’s a ton to learn.
02:25:15:Presenter: Make sure you get some rest because if you don’t take care of yourself. You can’t take care of your loved ones.
02:25:21:Presenter: So let’s take a look at what’s happening when it stroke happens first thing to keep in mind is that.
02:25:29:Presenter: The brain has now been damaged parts of it. Maybe stunned parts of the brain maybe dead.
02:25:37:Presenter: If it was an ischemic stroke or one that involved with Claude and you got care fast enough and other things.
02:25:39:Presenter: Just, right.
02:25:46:Presenter: Then that stroke may have been treated with tpa a clot busting drug that breaks up blood clots throughout the body.
02:25:57:Presenter: Or thrombectomy where essentially a wire is run up through the thigh into the brain, and then is used to extract the clock.
02:26:05:Presenter: Now if either of these treatments have happened recovery can be faster and shorter due to less long term damage for the brain.
02:26:14:Presenter: Of course, it is not guaranteed in each of these treatments have their own risk generally the clot buster can only be administered within.
02:26:22:Presenter: And a half to 6 hours after the onset of symptoms the thrombectomy can potentially be done up to about 24 hours after symptoms first.
02:26:32:Presenter: Appear but, of course those two treatments can only be done at specific medical centers as well. So why being fast is so import.
02:26:40:Presenter: And, of course, if the strokes caused by hemorrhagic incident a bleed instead of a clot, neither of those two treatments.
02:26:49:Presenter: Will apply also coming right down the hills and ischemic stroke in the hospital the doctors may take the Survivor off of blood pressure medication.
02:26:56:Presenter: To actually keep the blood pressure higher normally high blood pressure can lead to stroke. It’s one of the main.
02:27:02:Presenter: Things that leads to strokes, but in the immediate aftermath of a cloud based stroke would they want to do is.
02:27:09:Presenter: Refuse the brain they want to get more blood flowing to more parts of the brain to minimize any damage.
02:27:15:Presenter: Regardless of the cause or the treatments the brain is now traumatized parts of it may have been starved.
02:27:20:Presenter: Nutrients or suffocated from lack of oxygen.
02:27:26:Presenter: It’s likely swollen parts of it may have been drowned by blood and hemorrhagic stroke.
02:27:33:Presenter: It may have had a stick into it in as part of a thrombectomy which is totally unexpected for the brain.
02:27:41:Presenter: It’s now a new environment as recovery continues in a hospital Oregon emergency room. It’s trying to assess just what the hell is going on here.
02:27:49:Presenter: Some of it systems have gone offline parts of it have gone dark it may have lost track of certain limbs may have lost memory mail.
02:27:52:Presenter: Control of other parts of the body.
02:27:58:Presenter: It may take hours or days or weeks to know the full extent of what happens.
02:28:07:Presenter: And this is one of those areas where you have to be cautious because perhaps you’ve known somebody else who’s had a stroke or a friend or relative knows somebody else who’s had a stroke.
02:28:16:Presenter: And is telling you everything that is absolutely going to happen. But the thing is every stroke is going to be different.
02:28:20:Presenter: It’s going to vary based on the part of the brain that was damage.
02:28:27:Presenter: How extensive that damage is how long that damage in incident took.
02:28:31:Presenter: As well as the condition of the brain and the body pre stroke.
02:28:42:Presenter: People may temporarily misplace and I like take temporarily misplaced, instead of lose because with treatment folks can often get many of these things.
02:28:54:Presenter: Very temporarily misplace speech language motion or control over their arms or legs swallowing other aspects of the body.
02:29:00:Presenter: This really going to depend an vary widely based on all sorts of different factors.
02:29:08:Presenter: So no two strokes are going to be identical. One thing that is very common after stroke though is that sleep becomes more important.
02:29:25:Presenter: Ever, you know, we often think of sleep is just being down time when we do nothing that’s really not what’s happening sleep is sort of like when they shut down the highway at night for road work they don’t. Just shut it down to give the road to break shut it down.
02:29:33:Presenter: Now, there’s an opportunity to rip up the pavement dig big holes rebuild things repaint things and sort of restructure it.
02:29:41:Presenter: So that it can make for a better route down the road and that’s what’s happening in sleep the brain is actually continuing to work.
02:29:49:Presenter: Its continuing to rebuild getting rid of junk. It’s cleaning stuff out, it’s building new connections solidifying more data.
02:29:56:Presenter: Post stroke the brain is in a panic recovery mode sort of like even wind Geordi Laforge on the starship enterprise.
02:30:04:Presenter: Take the warp core offline for repair sometimes you do have to take parts of the brain offline I eat go to sleep.
02:30:11:Presenter: In order to actually do all of those repairs even when awake at hospital and not yet into therapy.
02:30:18:Presenter: The Survivor is not just lying there doing nothing the brain is still trying to rebuild connections. It’s processing the new one.
02:30:28:Presenter: In this new reality weight post stroke is tiring the brain is busy making all these plans for renovation.
02:30:38:Presenter: Anri routing connections and rebuilding things and that takes a ton of energy in a ton of resources, and there’s less energy in less resources there to begin with.
02:30:43:Presenter: So sleep become so important to deal with all of this.
02:30:49:Presenter: Another thing that many survivors have to deal with our challenges with sensory processing.
02:30:55:Presenter: We may think that it’s going to be helpful to support of all the friends and relatives around the bed and everybody there.
02:31:01:Presenter: To show how much they care and how much that person is in the thoughts is that really going to be helpful.
02:31:04:Presenter: Well, maybe it’s going to depend on the stroke.
02:31:11:Presenter: Is he one of the functions of the human brain is to reject stimuli.
02:31:15:Presenter: It’s too reject all sorts of things that go through our mind.
02:31:19:Presenter: You’re not quiet room right now.
02:31:20:Presenter: Are you really?
02:31:27:Presenter: Because of you focus on the other things that you can hear you may very well here refrigerator running.
02:31:30:Presenter: Or TV going on in the background.
02:31:36:Presenter: Or the of a computer fan or traffic penetrating the Windows from outside.
02:31:43:Presenter: Touch are you not touching anything.
02:31:45:Presenter: Without the air in your face.
02:31:52:Presenter: If you think about it can you feel that 14 pounds per square inch of air pressing against your skin?
02:32:00:Presenter: Can you feel the weight of glasses against your nose if you were glasses or perhaps that fabric of that shirt on your shoulder?
02:32:09:Presenter: Think about vision think about the things that you don’t focus on you may think you’re only looking at one thing but that’s really just what you’re paying attention to.
02:32:16:Presenter: In your field of vision are still all of these other objects all these colors all these shapes all of this motion.
02:32:24:Presenter: All of that data from all of those senses is always coming into your brain and your brain has to process. It.
02:32:31:Presenter: And then reject the vast majority of that perception data it wants to process only what you’re focusing on.
02:32:35:Presenter: If you couldn’t reject almost all of that data.
02:32:45:Presenter: What would you experience just add an impossible cacophony of sound in sight and feeling that would just be irritating and we don’t stress you out?
02:32:48:Presenter: Be just impossible to deal with.
02:32:53:Presenter: Processing of that takes precious energy.
02:33:02:Presenter: And in some cases the stroke is damaged the part of the brain that filters that out. So Survivor may have limited ability to actually filter data.
02:33:11:Presenter: In all the sudden all that stuff is still coming into their brain. And that is loud and it’s obnoxious, and it’s annoying.
02:33:20:Presenter: Doctor Jill Bolte Taylor in her book my stroke of insight talked about this experience. This is one of the effects of her stroke.
02:33:27:Presenter: The point where having all these people around you it was just more tiring and cause more pain, it was more disruptive.
02:33:29:Presenter: Than anything else.
02:33:37:Presenter: So should all of those visitors and should the TV be running and *** all the stuff be happening around your Survivor.
02:33:44:Presenter: Maybe the key is to listen to the Stroke Survivor and not just listen to what they say with their words.
02:33:46:Presenter: Especially if they don’t have words, but.
02:33:54:Presenter: Listen to their non verbal as well. How do they respond when there’s a lot of stimulus, how do they respond with this lot of people?
02:34:02:Presenter: Take your directive from that response something else that we see in support groups from time to time is the fear that their loved one.
02:34:03:Presenter: Is broken.
02:34:11:Presenter: Especially if they were perceived as being a very emotionally strong and together person who is able to take everything in stride.
02:34:13:Presenter: And now he start crying.
02:34:21:Presenter: That can be very scary for folks. But here’s the thing with stroke. It’s just perfectly normal, it’s called.
02:34:30:Presenter: Pba or pseudo bulbar affect also known as emotional lability a Gerrit actually talked about his experience with it back in episode 7.
02:34:37:Presenter: Basically this involves laughing or crying at inappropriate times.
02:34:40:Presenter: With the slightest provocation.
02:34:47:Presenter: I crying may sometimes be wailing it may seem forlorn that maybe triggered by a simple TV commercial or.
02:34:54:Presenter: Thinking about somebody else in their life for all sorts of other things it may seem like the depth of sadness.
02:34:57:Presenter: But that doesn’t necessarily mean that’s what it is.
02:35:06:Presenter: Even after my stroke I contended with crying even when I wasn’t sad it did manage to scare the girlfriend of it because.
02:35:09:Presenter: Emotionally I tend to lean towards the robotic.
02:35:14:Presenter: But it just felt good even when there was no sadness behind it.
02:35:23:Presenter: You’ll sometimes we just involves thinking about Captain Janeway ramming the voyager into that krenim ship in the star trek voyager story the year of hell.
02:35:30:Presenter: Or the departures of various doctors on doctor who or sometimes it would just be caused by exerting myself.
02:35:33:Presenter: In Pt in physical therapy.
02:35:36:Presenter: Within a couple of weeks minded pretty much faded.
02:35:42:Presenter: And sometimes this does last for weeks and for some folks that can last for years, there are medications that can help.
02:35:49:Presenter: Regardless, it doesn’t mean that the Survivor is broken or that they’re shell with the person that used to be.
02:35:54:Presenter: This is just something that’s normal and it’s common among stroke Survivor.
02:36:03:Presenter: After stroke recovery does begin immediately and it can be on going it may not be fast or easy.
02:36:08:Presenter: Brain works hard to build new connections an route around the damage.
02:36:15:Presenter: Popular wisdom may sometimes say that you have 6 or 12 months but it’s not true. Recovery doesn’t stop it.
02:36:21:Presenter: 6 months or 12 months if you don’t stop working on it and action oriented attitude is the key.
02:36:24:Presenter: It’s getting function back even years later.
02:36:32:Presenter: Survivors you see posting in support groups will tell you they got functionality back 2 4 5 6 10 years later.
02:36:37:Presenter: Things come back on line is the brain is able to rear out those connections.
02:36:40:Presenter: But you gotta do the work.
02:36:48:Presenter: You gotta try things and fail and try again, and you gotta do successful things thousands of times.
02:36:59:Presenter: And you gotta work with your team therapists the doctors that caregivers talk with other survivors find a local group finds an online support group connect with.
02:37:01:Presenter: Others who are going through this.
02:37:06:Presenter: More than 800,000 americans have a stroke every year.
02:37:08:Presenter: You’re unique.
02:37:09:Presenter: But you’re not alone.
02:37:14:Presenter: And that persist to our hack of the week.
02:37:18:Presenter: This week, let’s talk about Dyson.
02:37:27:Presenter: This magic material is a favor dove occupational therapists around the world. It’s a rubbery plastic materials that feels sticky.
02:37:29:Presenter: But it has no adhesive.
02:37:37:Presenter: Basically, it’s a high friction material. It is great for keeping things in place where this is most important for me is.
02:37:43:Presenter: When I’m eating yogurt at my coffee table at home because those small containers as soon as I put a.
02:37:52:Presenter: A spoon it start sliding around and with the full use of only one hand, I can’t really hold the yogurt containers still while I poke it with a spoon.
02:37:57:Presenter: What I can do is lay down a piece of die some I usually use one that’s about 8 inches.
02:38:04:Presenter: Where can I lay that on the table, and it will move on the table, I put the yogurt container on the dycem sheet?
02:38:10:Presenter: And the Yogurt container won’t move around and it’s great for keeping other plates and bowls and just other things.
02:38:17:Presenter: In place. I imagine I could even use it in my car to keep my cell phone from sliding around on the dashboard or something like that.
02:38:23:Presenter: It’s a great material. It’s also reusable. So you don’t throw it out if you use it. You just.
02:38:29:Presenter: Way and then take it out again, when you want to use it. If it starts to lose it stickiness.
02:38:36:Presenter: Simply wash it with soap and water let it dry and you can keep on using it.
02:38:45:Presenter: You can actually ordered by the roll off of Amazon just go to strokecast com slash die some DYCEM.
02:38:49:Presenter: In order to get to that page, and that’s actually my affiliate link there.
02:38:54:Presenter: You can find in other places as well. And you could probably find it in a lot of medical supply.
02:39:00:Presenter: Places or if you get catalogue of OTS supplies.
02:39:11:Presenter: When you do cut a piece of this role I found that it’s better to cut a bigger than you think you’re going to need because that way it will stick better to the surface like the table.
02:39:14:Presenter: Just gives it more surface area to grab.
02:39:22:Presenter: And, of course, if you value how it looks if you like it to be more decorative you can actually choose your favorite colors that comes in a.
02:39:29:Presenter: Wide variety of colors. I just want with the simple black role, but you can also get yellow and red and blue and all sorts of other things.
02:39:37:Presenter: Another idea is to actually go ahead and take a pair of fabric scissors or a fancy paper scissors.
02:39:43:Presenter: And you can actually use it to cut patterns into it. So make it sort of doilies.
02:39:52:Presenter: Suppose you could even sort of make die some snowflakes out of it for the winter you wanted to but I think that would be wasting a little.
02:39:58:Presenter: Dycem but, you know you can make it look great and give you some nice practically managers of less stuff.
02:40:00:Presenter: Sliding around.
02:40:03:Presenter: So that’s it for this week.
02:40:06:Presenter: What was your early stroke experience like?
02:40:13:Presenter: What would have been helpful to know sooner let us know in the comments over at strokecast COM slash newstroke?
02:40:20:Presenter: Consider picking up a roll of dice and for yourself just go to you strokecast com slash die some.
02:40:24:Presenter: You’ll also find that link over strokecast com slash newstroke.
02:40:32:Presenter: If you find this episode helpful please share it with someone else who might benefit from it either in the real world or online.
02:40:37:Presenter: Just send the link to strokecast com slash newstroke.
02:40:42:Presenter: And, of course as always don’t get best.
02:40:44:Presenter: Get better.
02:41:01:Presenter: Thanks a lot Bill Monroe and I’ll see you next strokecast Bill Monroe and bills gas provide general information and entertainment.
02:41:08:Presenter: Not medical advice. Please do not make any changes to your treatment plan or the execution of your treatment plan.
02:41:18:Presenter: Without first consulting your personal doctor or medical team the strokecast is a proud production of the currently speaking.
02:41:38:Presenter: Podcast network.